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I wanted to send along a big thank you for doing a blurb about congenital heart disease, and heart murmurs. I don't think it's widely understood - which speaks volume to the rareness of it. My daughter Alexis was born in October with a rare form of CHD called tricuspid atresia. She is post-op 10 days from major open heart surgery and is recovering. Only 1 in 15, 000 babies is born with what she has. She will eventually be heading into another surgery between the ages of 18 months and 3 years and hopefully she won't need anymore after that - but, this disease is for life.
In all the magazines I have read since her birth 3 months ago, this is the first that has actually brought up infant heart murmurs, which is how her diagnosis came about - a simple murmur.
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